Funkčné a Disociatívne Neurologické Symptómy : príručka pre pacientov
Links
All the links in the website and all the downloadable information in one place
Neurological Symptom Leaflets
Dissociative (Non-Epileptic) Attacks
www.nonepilepticattacks.info is a website launched in February 2011 all about non-epileptic attacks. Its written by a clinical team in Sheffield UK and has lots of useful information
The Non-Epileptic Attack Disorder Trust (NEAD trust) is a new organisation with a growing range of useful resources for patients including a forum.
FND Hope (www.fndhope.org) is a website started by a patient with functional motor symptoms
NEAD Scotland also has useful information for patients including a live chat room and forum. Again the emphasis on this website is more on psychological factors and trauma than on my own but there is much common ground
Psychological Symptom Booklets
Articles
With grateful thanks to Northumberland, Tyne and Wear NHS Trust for permission
Dissociation / Depersonalisation
Wikipedia – not always reliable but as of Sep 2008 the page is helpful
http://en.wikipedia.org/wiki/Depersonalization_disorder
the “Depersonalisation Research Unit” in London
http://www.iop.kcl.ac.uk/departments/?locator=911
These booklets are also from Northumberland, Tyne and Wear NHS Trust and may be helpful depending on circumstances. Please scroll down to find the correct booklet
If you cannot open these files (pdf files) then you will need Acrobat Reader.
Click on the picture below to download it
Stories
Click on Stories to read personal accounts of living with functional and dissociative symptoms
Videos
Poster
If you would like to print a poster advertising the website for your clinic room, waiting room or ward area then you can download an A4 poster here
Forums and Blogs
Non-Epileptic Attacks
Information about non-epileptic attacks
These other leaflets may be of help too
As a doctor I cannot unfortunately be responsible for a chat room on this website.
There are however separate facebook pages about functional and dissociative neurological symptoms which have been started by patients with these symptoms. You can find them at
http://www.facebook.com/groups/446141998734230/ http://www.facebook.com/groups/322848047124/10150468944737125/?notif_t=group_activity
http://www.www.facebook.com/groups/110873699030722/
There is also a blog about functional weakness and a forum about conversion disorder
I am not part of these groups and am therefore not responsible for their content. Indeed it is is possible that some of the information may be contradictory to the advice on this site, misleading or even harmful to you.
Neck - Information from Arthritis Research UK or NHS choices
Back - Information from Arthritis Research UK or NHS choices
Fibromyalgia -Fibromyalgia at NHS Choices or
Information Booklet from Arthritis Research Council (1.2Mb Pdf download)
BackCare www.backcare.org.uk
British Pain Society www.britishpainsociety.org
Pain Association Scotland www.painassociation.com
Pain Concern www.painconcern.org.uk
Pain Relief Foundation www.painrelieffoundation.org.uk
Pelvic Pain Support Network www.pelvicpain.org.uk
Health Improvement Scotland (part of NHS Scotland) published an important document on functional neurological symptoms in 2012.
THis is one of the first (possibly the first) document from a governmental agency which recognises the nature and extent of functional neurological symptoms and their associated disability and distress
Click on the document picture to access the page on the Health Improvement Scotland Website and download the document.
This document builds on NHS Scotland Neurology Standards which also specificed the importance of patients having access to correct diagnosis and multidisciplinary treatment
